Brain Donation for Schizophrenia Research: Gift, Consent, and Meaning
Overview
Affiliations
The Neuroscience Institute of Schizophrenia and Allied Disorders's (NISAD) "Gift of Hope" Tissue Donor Program is a volunteer programme for people who wish to donate their brain when they die for neuroscience research into schizophrenia. Organ donation for purposes of research differs from transplant donation in a number of ways, most notably the absence of a single recipient. Within a particular community, however, (people with schizophrenia and their carers) the single recipient is replaced by a sense of shared experience and preventing suffering in others. Donors have an investment in the research.
A qualitative study exploring the process of postmortem brain tissue donation after suicide.
Padoan C, Garcia L, Crespo K, Longaray V, Martini M, Contessa J Sci Rep. 2022; 12(1):4710.
PMID: 35304551 PMC: 8933424. DOI: 10.1038/s41598-022-08729-5.
Fernandez-Cerado C, Legarda G, Velasco-Andrada M, Aguil A, Ganza-Bautista N, Lagarde J J Neural Transm (Vienna). 2021; 128(4):575-587.
PMID: 33439365 PMC: 8099813. DOI: 10.1007/s00702-020-02286-9.
Why people donate their brain to science: a systematic review.
Lin M, Jowsey T, Curtis M Cell Tissue Bank. 2019; 20(4):447-466.
PMID: 31538265 PMC: 6863784. DOI: 10.1007/s10561-019-09786-3.
Legal and Ethical Issues in Brain Banking.
Huitinga I, de Goeij M, Klioueva N Neurosci Bull. 2018; 35(2):267-269.
PMID: 30390244 PMC: 6426895. DOI: 10.1007/s12264-018-0305-8.
Banking brains: a pre-mortem "how to" guide to successful donation.
Trujillo Diaz D, Hernandez N, Cortes E, Faust P, Vonsattel J, Louis E Cell Tissue Bank. 2018; 19(4):473-488.
PMID: 30220002 PMC: 6279548. DOI: 10.1007/s10561-018-9720-3.