Creating a Positive Experience of Research for People with Psychiatric Disabilities by Sharing Feedback

This paper describes a consumer evaluation that explored the reflections of persons with psychiatric disabilities on receiving individualized feedback following participation in a community research project. Findings indicate that feedback is an important element of research, offering a valued means to reciprocate participants' contributions. Feedback can facilitate mutual learning, fostering hope and empowerment, while participation in performance tests without feedback may reinforce negative self-evaluations. Feedback needs sensitive presentation and discussion, focused on strengths, to be experienced as worthwhile and respectful by people with psychiatric disabilities. This is particularly important as their self-identities may already be undermined by experiences of mental illness. Researchers need dedicated time, resources, and training to incorporate individual feedback in research.