Personal Health Records: Evaluation of Functionality and Utility

Overview

Journal J Am Med Inform Assoc

Publisher Oxford University Press

Specialty Medical Informatics

Date 2002 Feb 28

PMID 11861632

Citations 51

Authors

Matthew I Kim

Kevin B Johnson

Affiliations

Soon will be listed here.

Abstract

Objectives: Web-based applications have been developed that allow patients to enter their own information into secure personal health records. These applications are being promoted as a means of providing patients and providers with universal access to updated medical information. The authors evaluated the functionality and utility of a selection of personal health records.

Design: A targeted search strategy was used to identify eleven Web sites promoting different personal health records. Specific criteria related to the entry and display of data elements were developed to evaluate the functionality of each PHR. Information abstracted from an actual case was used to create a series of representative PHRs. Output generated for review was evaluated to assess the accuracy and completeness of clinical information related to the diagnosis and treatment of specific disorders.

Results: The PHRs selected for review employed data entry methods that limited the range and content of patient-entered information related to medical history, medications, laboratory tests, diagnostic studies, and immunizations. Representative PHRs created with information abstracted from an actual case displayed varying amounts of information at basic and comprehensive levels of representation.

Conclusions: Currently available PHRs demonstrate limited functionality. The data entry, validation, and information display methods they employ may limit their utility as representations of medical information.

Citing Articles

A Novel Secure Authentication Protocol for e-Health Records in Cloud with a New Key Generation Method and Minimized Key Exchange.

Mohinder Singh B, Natarajan J J King Saud Univ Comput Inf Sci. 2023; :101629.

PMID: 37366392 PMC: 10287185. DOI: 10.1016/j.jksuci.2023.101629.

The Use of a Technology Acceptance Model (TAM) to Predict Patients' Usage of a Personal Health Record System: The Role of Security, Privacy, and Usability.

Alsyouf A, Lutfi A, Alsubahi N, Alhazmi F, Al-Mugheed K, Anshasi R Int J Environ Res Public Health. 2023; 20(2).

PMID: 36674105 PMC: 9859518. DOI: 10.3390/ijerph20021347.

Utility, Value, and Benefits of Contemporary Personal Health Records: Integrative Review and Conceptual Synthesis.

Ruhi U, Chugh R J Med Internet Res. 2021; 23(4):e26877.

PMID: 33866308 PMC: 8120425. DOI: 10.2196/26877.

Energy efficiency in software: A case study on sustainability in personal health records.

Garcia-Berna J, Fernandez-Aleman J, Carrillo de Gea J, Toval A, Mancebo J, Calero C J Clean Prod. 2020; 282:124262.

PMID: 32982077 PMC: 7508020. DOI: 10.1016/j.jclepro.2020.124262.

Requirements of Health Data Management Systems for Biomedical Care and Research: Scoping Review.

Ismail L, Materwala H, Karduck A, Adem A J Med Internet Res. 2020; 22(7):e17508.

PMID: 32348265 PMC: 7380987. DOI: 10.2196/17508.

References

Pianko S, McHutchison J . Treatment of hepatitis C with interferon and ribavirin. J Gastroenterol Hepatol. 2000; 15(6):581-6. DOI: 10.1046/j.1440-1746.2000.02082.x. View

Spragins E . Get it in writing. Your medical record is like a credit rating. Don't neglect it. Newsweek. 1998; 132(8):62. View

Cimino J, Li J, Mendonca E, Sengupta S, Patel V, Kushniruk A . An evaluation of patient access to their electronic medical records via the World Wide Web. Proc AMIA Symp. 2000; :151-5. PMC: 2244037. View

Dickey L, Petitti D . A patient-held minirecord to promote adult preventive care. J Fam Pract. 1992; 34(4):457-63. View

Masys D, Baker D . Patient-Centered Access to Secure Systems Online (PCASSO): a secure approach to clinical data access via the World Wide Web. Proc AMIA Annu Fall Symp. 1997; :340-3. PMC: 2233557. View

Gonzalez A, Escobar-Jimenez F, Vazquez R, Ocete E, Olea N, Salmeron J . Increased risk of autoimmune thyroid disease in hepatitis C vs hepatitis B before, during, and after discontinuing interferon therapy. Arch Intern Med. 1998; 158(13):1445-8. DOI: 10.1001/archinte.158.13.1445. View

Rashbass J . msJAMA. The patient-owned, population-based electronic medical record: a revolutionary resource for clinical medicine. JAMA. 2001; 285(13):1769. View

Schneider J . Online personal medical records: are they reliable for acute/critical care?. Crit Care Med. 2001; 29(8 Suppl):N196-201. DOI: 10.1097/00003246-200108001-00009. View

Koh L, GREENSPAN F, Yeo P . Interferon-alpha induced thyroid dysfunction: three clinical presentations and a review of the literature. Thyroid. 1998; 7(6):891-6. DOI: 10.1089/thy.1997.7.891. View

10.

Hetzel M, Williams I, Shakespeare R . Can patients keep their own peak-flow records reliably?. Lancet. 1979; 1(8116):597-9. DOI: 10.1016/s0140-6736(79)91019-5. View

11.

Jones R, Pearson J, McGregor S, Cawsey A, Barrett A, Craig N . Randomised trial of personalised computer based information for cancer patients. BMJ. 1999; 319(7219):1241-7. PMC: 28275. DOI: 10.1136/bmj.319.7219.1241. View

12.

Joch A . Can the Web save disease management?. Healthc Inform. 2000; 17(3):59-60, 62, 64-70. View

13.

Hertz C, BERNHEIM J, Perloff T . Patient participation in the problem-oriented system: a health care plan. Med Care. 1976; 14(1):77-9. DOI: 10.1097/00005650-197601000-00008. View

14.

Miller S . A trial of parent held child health records in the armed forces. BMJ. 1990; 300(6731):1046. PMC: 1662776. DOI: 10.1136/bmj.300.6731.1046. View

15.

Tsai C, Starren J . msJAMA. Patient participation in electronic medical records. JAMA. 2001; 285(13):1765. View

16.

Hagland M . Online consumer health records: revolution or confusion?. J AHIMA. 2000; 71(3):28-32. View